| | testuser1 | Reviewer | this is a test | 8/18/2009 3:04:25 PM |
| | testuser2 | Reviewer | This is testuser2 | 8/18/2009 6:12:13 PM |
| | Maryann Long | Patient | When are the meetings coming to New England? | 8/20/2009 1:37:47 PM |
| | Linda | Patient | Are you having any success with tibial nerve stimulation? If so, what does your treatment series look like? | 8/20/2009 2:12:04 PM |
| | Sandra | Patient | Could IC cause belching and stomach up set ?
Thank you | 8/20/2009 10:05:27 PM |
| | Cheryl | Patient | Is there anything else Ican do to help other than just taking meds. to help me relax my muscles? I took pyh. therapy and that didn't help. | 8/20/2009 10:54:06 PM |
| | Ivette | Patient | What causes IC/PFD? | 8/20/2009 11:20:15 PM |
| | Ivette | Patient | What causes IC/PFD? | 8/20/2009 11:20:22 PM |
| | Ronni | Patient | Can IC affect your heart rate in anyway? | 8/21/2009 12:03:38 AM |
| | tracy bush | Patient | when is the next ic forum in atlanta. i did not sign up for the aug 23rd at the wwaverly. | 8/21/2009 9:00:48 AM |
| | tracy bush | Patient | when is the next ic forum in atlanta. i did not sign up for the aug 23rd at the wwaverly. | 8/21/2009 9:00:48 AM |
| | Jennifer | Patient | Can you have periods of time where you feel better and then have huge flares again? | 8/21/2009 10:44:35 AM |
| | tracy bush | Patient | when is the next ic forum in atlanta. i did not sign up for the aug 23rd at the wwaverly. | 8/21/2009 3:17:31 PM |
| | tracy bush | Patient | when is the next ic forum in atlanta. i did not sign up for the aug 23rd at the wwaverly. | 8/21/2009 3:17:38 PM |
| | tracy bush | Patient | when is the next ic forum in atlanta. i did not sign up for the aug 23rd at the wwaverly. | 8/21/2009 3:17:40 PM |
| | Lisa | Patient | Is food the number one problem cause for IC flare ups? | 8/21/2009 8:13:13 PM |
| | Lisa | Patient | Is food the number one problem cause for IC flare ups? | 8/21/2009 8:13:24 PM |
| | paige | Patient | is a high iron count related in any way to ic | 8/22/2009 5:09:22 PM |
| | | | | 8/23/2009 12:26:09 AM |
| | Natalie | Patient | My dr.'s don't know why I have severe incontinence along with my IC. I've had a full battery of tests. What other test can I do and what other treatments besides meds, pelvic therapy, biofeedback, etc.? | 8/23/2009 11:36:52 AM |
| | Natalie | Patient | I have severe incontinence with my IC. What other test can I do and what other treatments besides meds, pelvic therapy, biofeedback, etc.? | 8/23/2009 11:37:18 AM |
| | bill | Patient | does this condition always get worse with age? | 8/23/2009 11:47:27 AM |
| | joey libby | Friend of a person with IC | will the ICA Forum be published so I can buy it in print? | 8/23/2009 12:15:21 PM |
| | Shannon | Patient | Do other IC patients experience extreme vaginal wetness when having sexual intercourse? Can anything be done for this problem? | 8/23/2009 12:27:25 PM |
| | Carolyn Smith | Patient | What causes it? | 8/23/2009 12:31:54 PM |
| | kathy | Patient | Is there any likelyhood of nerve damage with the medtronic interstim implant | 8/23/2009 12:39:31 PM |
| | tori | Patient | I think I have exhausted all my options in the state i live in. Who is the go to person or "guru" on IC in the United States? | 8/23/2009 12:40:30 PM |
| | Denise | Patient | Can your monthly menstruation/hormones play a big part in IC? My IC only happens with my menstruation and the week following. | 8/23/2009 12:41:04 PM |
| | kathy | Patient | can the interstim implant be removed without damage to the nerve that it is attached to?
Is there a study in place to moniter implant complications with longterm implant or with implant being removed? | 8/23/2009 12:43:00 PM |
| | bill | Patient | the broadcast isnt working. | 8/23/2009 12:43:56 PM |
| | Diana | Patient | Do you have any information on the use of Estrace in olive oil? | 8/23/2009 12:54:20 PM |
| | Linda Parham | Patient | I have problems with pain, vomiting and diarhea, sweating profusely for hours in the bathroom. Gastroenteroligist can find anything. How is this related to my IC? | 8/23/2009 12:56:40 PM |
| | Lois | Patient | Would you please explain why IC patients find vitamin supplements to cause flares? Do you have any suggestions as to which vitamin supplements (besides EsterC) to be less harmful to IC patients?
Thank you! | 8/23/2009 12:57:16 PM |
| | Paula | Patient | I am often very acidic. I use baking soda. It doesnt help very much. I am also very careful with my diet. Do you have any suggestion for me? | 8/23/2009 12:57:56 PM |
| | Paula | Patient | I am often very acidic. I use baking soda. It doesnt help very much. I am also very careful with my diet. Do you have any suggestion for me? | 8/23/2009 12:58:00 PM |
| | Cindy | Patient | I have IC and have suffered for many years. What can you tell me about CystoProtek, a non-prescription capsule, suggested by my "pelvic pain specialist". | 8/23/2009 12:59:35 PM |
| | Heidi | Patient | My doctor wants to do instillations but they hurt when they put the catheter in. What can they do to make them more comfortable? | 8/23/2009 12:59:54 PM |
| | Lois | Patient | Are there any medications (other than Elavil and Atarax) which do not cause drowsiness that may be helpful in treating IC?
Thank you for taking my questions.
Lois
| 8/23/2009 1:00:01 PM |
| | Beth | Family member of someone with IC | My daughter is 16 and has had IC for 13 months. She is extremely sensitive to lots of meds. Her urologist has tried everything to her knowledge. What would you recommend to lower pelvic pain that is constantly a 7? Thank you so much. | 8/23/2009 1:02:09 PM |
| | | | The volume is not loud enough. | 8/23/2009 1:02:32 PM |
| | | | I am listening through the internet and I can barely hear the speaker- I have the volume set as loud as it will go. | 8/23/2009 1:03:20 PM |
| | Carol Fee | | audio is very weak | 8/23/2009 1:03:21 PM |
| | Antoinette | Patient | What can I do that will help me deal with the severe pain during menstrual period | 8/23/2009 1:03:26 PM |
| | Heidi | Patient | The volume of the webcast is very LOW. I've got all the volumes at their highest controls... can you adjust that?? | 8/23/2009 1:03:32 PM |
| | Heidi | Patient | The volume of the webcast is very LOW. I've got all the volumes at their highest controls... can you adjust that?? | 8/23/2009 1:03:46 PM |
| | Phil | | NO SOUND | 8/23/2009 1:03:49 PM |
| | Pat Hare | Patient | I am getting sound but only too low to hear. I have full sound on the webcast toolbar, and on my computer. Thanks for any help you can give me. | 8/23/2009 1:03:55 PM |
| | Colleen | Patient | Has anyone else noticed a connection between travel in a moving vehicle such as car or plane and worsening of IC symptoms? | 8/23/2009 1:05:38 PM |
| | Dona | Patient | can you die from IC and what is it that these Doctor's want you to eat | 8/23/2009 1:07:01 PM |
| | Phyllis | Patient | I have not received a password to watch online although I have registed twice. Please help. I am missing everything.
pbmunczek@gmail.com | 8/23/2009 1:07:15 PM |
| | Niki | Patient | I'm just wondering how to make the webcast work. I can see slides and the submit question/comment area, but no webcam. | 8/23/2009 1:08:06 PM |
| | Alma | Patient | I had the intersim put in June 2008 and it has helped with frequency/urgency. I still have extreme pain though. What recommendations could you recommend. I am on valiumxday,1/2 vicodin twice a day and ambiem for sleep at night. | 8/23/2009 1:08:58 PM |
| | Cindy | Patient | I used to take Centrum vitamins & a nutritionist said to stop. I now take calcium, Vit D, and buffered Vit C. But my eyesight is not as good now. Should I take a Selenium supplement & what kind? I have heard Brazil nuts 2/day but IC nuts are on bad list. | 8/23/2009 1:09:00 PM |
| | vicki Hooley | Patient | could you please turn up your mikes, it is very hard to hear you online. thank you | 8/23/2009 1:09:07 PM |
| | Colleen | Patient | Has anyone else noticed that IC symptoms are worse later in the day - i.e. one might feel OK in the morning and terrible by bedtime? | 8/23/2009 1:09:18 PM |
| | Colleen | Patient | Has anyone else noticed that IC symptoms are worse later in the day - i.e. one might feel OK in the morning and terrible by bedtime? | 8/23/2009 1:09:34 PM |
| | bill | Patient | the broadcast isnt working. | 8/23/2009 1:10:43 PM |
| | | | | 8/23/2009 1:12:26 PM |
| | Tammy | Patient | My doctor wants to take me off of my Elmiron and amytriptalene as I have been feeling much better in the last few months. I am afraid to do this because I am afraid the symptoms will come back. What is your opinion on discontinuing this medication? | 8/23/2009 1:12:35 PM |
| | Colleen | Patient | Has anyone else noticed that IC symptoms are worse later in the day - i.e. one might feel OK in the morning and terrible by bedtime? | 8/23/2009 1:13:42 PM |
| | Dee | Patient | Isn't it dangerous to avoid potassium when lack of this nutrient can have severe consequences? | 8/23/2009 1:18:05 PM |
| | Niki | Patient | I'm at a point where bladder pain is no longer primary, but my symptoms are overall lethargy, overall neuromuscular pain, and generally feeling "swampy" or acidic.
What's the latest on systemic and autoimmune involvement, and how best to intervene? | 8/23/2009 1:18:21 PM |
| | Niki | Patient | I've heard that there was recently "official" recognition of P.T. for IC and that this could lead to insurance playing along more nicely. Any word?
I don't think the webcast is working. | 8/23/2009 1:20:45 PM |
| | Suzanne | Patient | Are you aware of any connection between gluten/gluten intolerance and IC? | 8/23/2009 1:21:18 PM |
| | Ami | Healthcare provider | talk to us about the diagnosis.how do you diagnose IC? | 8/23/2009 1:22:13 PM |
| | tasha | Patient | if I am doing bladder instils once a week using elmiron, should I also be taking it orally as well? | 8/23/2009 1:22:37 PM |
| | Margy | Patient | I am alergic to Elmiron. Is there an alternative drug in place? | 8/23/2009 1:24:55 PM |
| | Joy | Patient | I was on Elmiron for at least a year and had insignificant improvement, but it caused massive nosebleeds. Can glocosamine/chrondrotin a good substitute for Elmiron? | 8/23/2009 1:25:30 PM |
| | Kimberly | Patient | I'm allergic to Elmiron (cardiac response), can you please suggest an alternative or substitute for Elmiron? | 8/23/2009 1:25:41 PM |
| | Marcene | Patient | How much baking soda in water should you take after a flare? | 8/23/2009 1:26:06 PM |
| | Karen | Patient | What is the user id and password for the webcast? I signed up a few weeks ago, and tried again today, but was not sent a user id and password to sign in. karen.hixson@salem.edu | 8/23/2009 1:27:31 PM |
| | Marcene | Patient | What was the cocktail Dr. Proctor uses? It isn't on the slide- heparin, Elmiron, and what else? Also, in what proportion of each? | 8/23/2009 1:29:59 PM |
| | | | | 8/23/2009 1:30:38 PM |
| | Sandra | Other | IC symptoms appeared for the first time whem menstrual bleeding should have begun. IC symptoms continue and menstruation has stopped. Is there a connection/cause? | 8/23/2009 1:31:07 PM |
| | | | | 8/23/2009 1:31:49 PM |
| | john | Patient | how can we download copies of the slides | 8/23/2009 1:31:50 PM |
| | | | | 8/23/2009 1:32:09 PM |
| | Sandra | Other | Is Elmiron safe if trying to conceive OR during pregnancy? | 8/23/2009 1:33:34 PM |
| | Marcene | Patient | What were the names and doses of the anticholinergic medications he recommends? | 8/23/2009 1:35:36 PM |
| | Debbie | Patient | I was diagnosed with IC in 1993. I have been on Elmiron, 2 capsules twice a day. Do you recommend reducing the dosage after being on Elmiron for that many years? | 8/23/2009 1:35:50 PM |
| | Mark | Patient | How could we find find a doctor (nearby? anywhere?) recommended for treating IC with "Injection therapy" to releast "Trigger points"?
(trigger point injections for IC?) | 8/23/2009 1:37:01 PM |
| | Sara | Patient | At what point do you consider surgery? I've failed all conservative treatment, including the stimulator. I am disabled & have a poor quality of life. | 8/23/2009 1:37:19 PM |
| | mel | Patient | Is Ic progressive if caught early? and how long can a person take Elimiron? | 8/23/2009 1:37:29 PM |
| | Mark | Patient | How could we find find a doctor (nearby? anywhere?) recommended for treating IC with "Injection therapy" to releast "Trigger points"?
(trigger point injections for IC?) | 8/23/2009 1:37:59 PM |
| | Hank | Patient | I have burning in my urethra during urination. Pyridium and urelle don't work well. Is the burning do to a spasm?? or is it irritation of the urethra itself. Any recommendations/ | 8/23/2009 1:40:56 PM |
| | Angela | Patient | what can u do for patients like myself who cannot take the extreme pain that a catheter causes, but is also getting no relief from oral meds like elmiron? | 8/23/2009 1:42:12 PM |
| | Angela | Patient | what can u do for patients like myself who cannot take the extreme pain that a catheter causes, but is also getting no relief from oral meds like elmiron? | 8/23/2009 1:42:17 PM |
| | Marcene | Patient | What did he talk about after interstim therapy? Tims? Tins? There wasn't a slide. | 8/23/2009 1:42:30 PM |
| | Niki | Patient | I've switched to a non-macintosh computer - now i can see the webcase but not hear it. | 8/23/2009 1:44:58 PM |
| | Shelly | Patient | I had the interstim implanted last december. I have much fewer flare ups, what is the research on the interstim and the success for pain w.the interstim | 8/23/2009 1:45:48 PM |
| | Marcene | Patient | Why was the URG101 study closed early? Was there a problem with adverse affects? | 8/23/2009 1:45:56 PM |
| | Krystal | Patient | Why did they close the URG101 Study early? | 8/23/2009 1:46:39 PM |
| | Niki | Patient | Now I have volume...I think the lesson is the webcast is not mac compatible! | 8/23/2009 1:47:27 PM |
| | Marcene | Patient | Can we download a copy of the slides? If so, how? | 8/23/2009 1:48:26 PM |
| | LINDA | Patient | I HAVE A HISTORY OF ULCERS AND TAKE TAGAMET 800MG ADAY, SINCE ELMIRON IS A MILD BLOOD THINNER, CAN I TAKE THE REQUIRED ELMION DOSAGE? THANK YOU | 8/23/2009 1:52:02 PM |
| | Carol | Patient | How can you win disability at appeal stage?
Are there any new treatments besides Bladder Instillations?
Thank you | 8/23/2009 1:52:14 PM |
| | Diana | Patient | How would you alter therapy for an individual with IC and vulvar vestibulitis? | 8/23/2009 1:52:37 PM |
| | Kimberly | Patient | Can THP be replaced in IC patients somehow? I understand the marker priciples, however can we change, add or replace this protein? | 8/23/2009 1:53:07 PM |
| | Kimberly | Patient | Can THP be replaced in IC patients somehow? I understand the marker priciples, however can we change, add or replace this protein? | 8/23/2009 1:53:12 PM |
| | Kimberly | Patient | Can THP be replaced in IC patients somehow? I understand the marker priciples, however can we change, add or replace this protein? | 8/23/2009 1:53:40 PM |